The Kasners and Duchenne Muscular Dystrophy

The Kasner Family is made up of 4 crazy boys, AJ, Ben, Caleb and Dunky (ABCD), and their parents Sarah and Dan.  They reside in South Minneapolis where they love their neighborhood and thoroughly enjoy the summers where they walk, run or bike wherever they go.  AJ and Ben are college-aged and living their best life.  Caleb and Dunky are 9 and 7 and are living a life different than any of us ever dreamed.  Nearly 5 years ago, these boys were diagnosed with Duchenne Muscular Dystrophy (Duchenne).  Duchenne is a progressive, neuromuscular disease that primarily affects boys and is terminal as there is no treatment or cure.  The disease happens because these boys are missing dystrophin, which is a necessary protein found in the muscles.  With each muscle movement, muscles breakdown and build back up, but Caleb and Dunky's never build back up.  So essentially they are losing the ability to move their bodies with each movement they make.  Kids with Duchenne are usually wheelchair bound by 8 - 12 and have a life expectancy around early 20's.  In addition to their physically failing bodies, there are also behavioral issues that come with Duchenne, which are exacerbated due to the daily steroids they have to take. 

Kasners Kick Duchenne

Kasners Kick Duchenne was created to advocate for Caleb and Dunky. Funds raised by Kasners Kick Duchenne help the Kasner Family directly, raise awareness for this life-threatening disease, and help with front-line Duchenne research in hopes of giving Caleb and Dunky and others battling Duchenne a long and incredible life!

Click here for Kasners Kick Duchenne website.

FUNDS RAISED THROUGH KKD GRAVEL BY YOUR GENEROSITY AND SUPPORT

For this event, Kasners Kick Duchenne has partnered with the Flanigan Lab at Nationwide Children’s Hospital. The Flanigan Lab will use your donated money on the Duchenne frontline researching for a cure.

All money raised by KKD Gravel goes directly to the Flanigan Lab at Nationwide Children’s. All expenses for the event are being covered by our generous sponsors and volunteers—thank you! To be sure, each rider’s registration donation goes directly to the Flanigan Lab at Nationwide; that is, once registration closes BikeReg will issue a check directly to the Flanigan Lab at Nationwide for the monies raised by way of your registration. Thank you to each rider for your support! And if you are unable to ride on that day, you are still able to show your support by registering for the event as a “Friend of KKD Gravel.” Thank you to each Friend of KKD! Also, thank you in advance for the proceeds we raise at the event through means other than registration donations, for example, by way of the event raffles and t-shirt sales, which also go directly to the fight against Duchenne.

ALL REGISTRATION DONATIONS ARE TAX DEDUCTIBLE. After registering, you will be emailed the requisite tax information from Flanigan Lab at Nationwide Children’s Hospital.

Click here for Flanigan Lab at Nationwide Children’s Hospital website.

KKD Gravel and the Kasners are extremely grateful for your support of Caleb and Dunky and the fight against Duchenne.